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Presentations

Breaking the Silence: Addressing Mental Health in the Sjrögen's Community
Sjrögen's Europe | November 2024
Keepin' It Rare | Let's Talk Therapy
Bionews in collaboration with NORD | February 2025
Watch episodes 2-5 with Dr. Al on the Bionews website

SareptaCircle Event: It Takes a Village
Sarepta Therapeutics | September 2023
Story Slam
Story Slam, Penn Nursing
University of Pennsylvania School of Nursing | February 2022
Podcasts
Articles
BioNews | August 2025
BioNews | April 2025
Rare Disease Advisor | July 2024
CNN | April 2024
Rare Revolution Magazine | October 2021


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