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Presentations
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Breaking the Silence: Addressing Mental Health in the Sjrögen's Community
Sjrögen's Europe | November 2024
Keepin' It Rare | Let's Talk Therapy
Bionews in collaboration with NORD | February 2025
Watch episodes 2-5 with Dr. Al on the Bionews website
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Story Slam, Penn Nursing
University of Pennsylvania School of Nursing | February 2022
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Ways to Support Siblings (of children with neurologic conditions) during COVID-19
Child Neurology Foundation | June 2020
Podcasts
Articles
Rare Disease Advisor | July 2024
CNN | April 2024
Rare Revolution Magazine | October 2021
Caring Magazine | June 2001
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