top of page
Presentations
Living with Uncertainty in Rare Disease
Folia Health | May 2026
Managing Your PV and Mental Health
Stories from the Marrow Podcast | September 2025
Meeting the Challenge of Rare Disease: 25 Years of Lessons Learned
Parent Project Muscular Dystrophy | July 2025
Mental Health and the Rare Disease Community
CheckRare | May 2025
Keepin' It Rare | Let's Talk Therapy
Bionews in collaboration with NORD | February 2025

Breaking the Silence: Addressing Mental Health in the Sjrögen's Community
Sjrögen's Europe | November 2024
Watch episodes 2-5 with Dr. Al on the Bionews website
Podcasts
Articles
BioNews | August 2025
BioNews | April 2025
Rare Disease Advisor | July 2024
CNN | April 2024
Rare Revolution Magazine | October 2021


bottom of page
