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Presentations

Meeting the Challenge of Rare Disease: 25 Years of Lessons Learned

Parent Project Muscular Dystrophy | July 2025

Mental Health and the Rare Disease Community

CheckRare | May 2025

Keepin' It Rare | Let's Talk Therapy 

Bionews in collaboration with NORD | February 2025

Breaking the Silence Addressing Mental Health in the Sjögren's Community

Breaking the Silence: Addressing Mental Health in the Sjrögen's Community

Sjrögen's Europe | November 2024

Watch episodes 2-5 with Dr. Al on the Bionews website

SareptaCircle Event: It Takes a Village, September 2023

SareptaCircle Event: It Takes a Village

Sarepta Therapeutics | September 2023

Story Slam

Story Slam, Penn Nursing

University of Pennsylvania School of Nursing | February 2022

Podcasts

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