top of page
Presentations
Play Video
Breaking the Silence: Addressing Mental Health in the Sjrögen's Community
Sjrögen's Europe | November 2024
Keepin' It Rare | Let's Talk Therapy
Bionews in collaboration with NORD | February 2025
Watch episodes 2-5 with Dr. Al on the Bionews website
Play Video
SareptaCircle Event: It Takes a Village
Sarepta Therapeutics | September 2023
Play Video
Story Slam, Penn Nursing
University of Pennsylvania School of Nursing | February 2022
Podcasts
Articles
BioNews | April 2025
Rare Disease Advisor | July 2024
CNN | April 2024
Rare Revolution Magazine | October 2021
Caring Magazine | June 2001
bottom of page