Rare Resilience is the groundbreaking new podcast from psychologist, rare disease community member, and rare dad, Dr. Al Freedman. The psychological burden of rare diseases on patients, families, and caregivers, can be overwhelming. Rare Resilience amplifies authentic voices, builds community, and reduces the stigma associated with being a member of this extraordinary community.
Watch the episodes on YouTube or listen to the episodes by clicking on the episode name.
In this first episode, we are joined by producer and entrepreneur Patrick James Lynch, co-founder and CEO of Believe Limited. Patrick shares his experience growing up with his brother Adam, both of them living with hemophilia. Patrick explains what Adam’s death from hemophilia as a teenager taught him about grief and how it shaped his life and work as an adult with rare disease.
Episode Two: Dropping 9/30
Come back 9/30 for episode two of the Rare Resilience podcast.
Episode Three: Dropping 10/14
Come back 10/14 for the episode three of Rare Resilience podcast.