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Pharmaceutical / Industry

  • Alagille Syndrome Alliance, Collierville, TN

  • Amgen, Thousand Oaks, CA

  • Avexis, Bannockburn, IL

  • Biogen, Cambridge, MA

  • Genentech/Roche, San Francisco, CA

  • Horizon Therapeutics, Deerfield, IL (Now Amgen)

  • NMD Pharma, Aarhus, Denmark

  • Novartis Gene Therapies, Bannockburn, IL

  • Retrophin, San Diego, CA

  • Sarepta Therapeutics, Cambridge, MA

  • Scholar Rock, Cambridge, MA

  • Syneos Health Rare Disease Consortium, Morrisville, NC

  • Travere Therapeutics, San Diego, CA

  • TREND Community, Philadelphia, PA

  • Ultragenyx Pharmaceutical, Novato, CA

  • World Orphan Drug Congress

Previous Engagements

Rare Disease Organizations

  • Aicardi Goutieres Syndrome Advocacy Association (AGSAA)

  • ALDConnect (Adrenoleukodystrophy)

  • CTNNB1 Foundation (CTNNB1 Syndrome)

  • Cure GM1 (GM1 Gangliosidosis)

  • Cure LBSL (Leukoencephalopathy)

  • Cure MLD (Metachromatic Leukodystrophy)

  • CureSMA (Spinal Muscular Atrophy)

  • Cystinosis Research Network

  • Freidrich's Ataxia Research Alliance

  • GBS/CIDP Foundation International (Guillain-Barre’ syndrome/chronic inflammatory demyelinating polyneuropathy)

  • Global Genes

  • Global Leukodystrophy Initiative (GLIA)

  • HCU Network America (Homocystinurias)

  • Histiocytosis Association

  • IgG4-RD Community

  • International FOP Foundation (Fibrodysplasia Ossificans Progressiva)

  • Jett Foundation

  • Lymphangiomatosis & Gorham's Disease Alliance

  • National Ataxia Foundation 

  • National Organization of Rare Disorders (NORD)

  • NephCure International

  • Muscular Dystrophy Association (MDA)

  • National Ataxia Foundation

  • SMA Australia (Spinal Muscular Atrophy)

  • SMA Russia (Spinal Muscular Atrophy)

  • Two Disabled Dudes

  • VACTERL Syndrome Association

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Health Care Organizations Icon

Health Care Organizations

  • Bayada Home Health Care, Moorestown, NJ

  • Center for Spiritual Care & Pastoral Formation, Wilmington, DE

  • Children's Hospital of Philadelphia

  • Delaware Valley Society of Pediatric Nurses

  • Gene Therapy Program, Perelman School of Medicine, University of Pennsylvania

  • KenCrest Community Services, Philadelphia, PA

  • National Association of Home Care & Hospice

  • National Society of Pediatric Nurses

  • Nemours/dupont Hospital for Children, Wilmington, DE

  • Nemours Children's Hospital, Orlando, FL

  • NY ScreenPlus: A Comprehensive, Flexible, Multi-disorder Newborn Screening Program, Albert Einstein College of Medicine, Bronx, NY

  • Mothers of Multiples

Universities & School Districts

  • Avon Grove School District, West Grove, PA

  • Delaware Valley Association for the Education of Young Children, Philadelphia, PA

  • Delaware Valley Friends School, Paoli, PA

  • Friends Select School, Philadelphia, PA

  • Landsdowne Friends School

  • Moorestown Friends School, Moorestown, NJ

  • Neumann University, Aston, PA

  • ​Radnor Area School District, Wayne, PA

  • Robert A Fox Leadership Program, University of Pennsylvania

  • Stratford Friends School, Newtown Square, PA

  • Unionville-Chadds Ford School District, Kennett Square, PA

  • University of Delaware, Newark, DE

  • University of Pennsylvania School of Nursing, Philadelphia, PA

  • Westtown School, West Chester, PA

  • Wilmington Friends School, Wilmington, DE

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Al Freedman Volunteer work | Children with MS
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